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Posts from ‘February, 2012’
Lotus Tissue Repair Announces Support of First International Patient Registry for Epidermolysis Bullosa (EB) and …
CAMBRIDGE, Mass.–(BUSINESS WIRE)– Lotus Tissue Repair, Inc., a biotechnology company developing the first and only protein replacement therapy for the treatment of the rare genetic disorder dystrophic epidermolysis bullosa (DEB), today announced that it is providing grants to support the development and maintenance of the first international EB patient-reported registry, EBCare.org . The registry was launched today by the DEB Research Association (DEBRA) International and DEBRA of America in conjunction with Rare Disease Day, as Lotus Tissue Repair participated in a Rare Disease Day event hosted by the Massachusetts Biotechnology Council at the Massachusetts State House. “One of the biggest challenges we face when working to treat rare genetic diseases is the lack of robust patient information,” said Mark de Souza, Ph.D., president and chief executive officer of Lotus Tissue Repair
Faulty Video Screens at President's House Being Replaced
More than 14 months after Mayor Nutter opened the President’s House memorial as “a living story for us to impart to our children,” more often than not those children have been greeted by blank, lifeless video screens. The glass canopy enclosing archaeological remains of the nation’s first executive mansion, where George Washington and John Adams conducted their presidencies and where Washington held nine enslaved Africans, has repeatedly leaked and fogged up. Atmospheric controls within the enclosure have been tweaked repeatedly as destructive moisture built up within
House of Prides Wants to Make Repairs
DOVER, Del.- The Dover City Council is giving the House of Pride until the end of March to repair or demolish one of its group homes.
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